Autism and the Family in Urban India: Looking Back, Looking - download pdf or read online

By Shubhangi Vaidya

ISBN-10: 1191211231

ISBN-13: 9781191211239

ISBN-10: 1541541561

ISBN-13: 9781541541566

ISBN-10: 813223605X

ISBN-13: 9788132236054

ISBN-10: 8132236076

ISBN-13: 9788132236078

The ebook explores the lived truth of parenting and taking care of kids with autism in modern city India. it's according to a qualitative, ethnographic learn of households of youngsters with autism as they negotiate the difficult terrain of making a choice on their baby s incapacity, acquiring a prognosis, having access to applicable companies and their on-going efforts to return to phrases with and make feel in their baby s certain subjectivity and mode of being. It examines the gendered dimensions of coping and care-giving and the differential responses of dad and mom, siblings and grandparents and the community to this complicated and sometimes super not easy situation.
The ebook tackles head at the sombre query, what's going to ensue to the kid after the oldsters are long gone ? It additionally significantly examines the position of the country, civil society and felony and institutional frameworks in position in India and undertakes a case learn of motion for Autism ; a Delhi-based NGO manage through mom and dad of kids with autism. This booklet additionally attracts upon the writer s personal engagement together with her baby’ s incapacity and hence lends an authenticity born out of lived adventure and in-depth figuring out. it's a helpful addition to the literature within the sociology of the relations and incapacity experiences.

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Extra info for Autism and the Family in Urban India: Looking Back, Looking Forward

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Studies by psychologists, mental health professionals, paediatricians and anthropologists have generated a wealth of information on how autism is negotiated in domestic as well as clinical settings. The work of Gupta and Singhal (2004, 2005) examines how positive perceptions regarding the child’s disability and the provision of psycho-social support have positive outcomes for family coping. Brezis et al. (2015) expand upon the theme by analysing a parent training programme in Delhi and its impact on fostering a greater sense of acceptance amongst mothers.

In the third edition of the DSM (1980) autism was added as a syndrome in its own right and in the fourth edition in 1994, diagnostic criteria were considerably expanded and Asperger’s syndrome was also added to the list as one of the several variants of ‘autism spectrum disorder’. Thus, it emerged from an unknown disorder in the 1940s to a marginal phenomenon in the 1980s to a very common diagnosis in many parts of the world today where it is even perceived as an ‘epidemic’ of sorts. Its major cultural presence in highly industrialized societies like America has been analysed by Straus as reflecting in a pathological form the very attributes that the culture values, namely autonomous individuality.

Accordingly, children are being socialized to adapt and adjust to the changing value system and ethos (Bharat 1992). However, a circumstance like a developmental disability confounds this process due to its association with dependence, continuous care and support through the life-course. Patel (2005, p. 31) makes the point that Indian sociology and social anthropology of the family has been “dodging the study of crises” which have challenged some of the principles of kinship and marriage in Indian society.

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Autism and the Family in Urban India: Looking Back, Looking Forward by Shubhangi Vaidya

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